This is a tale of debauchery and exploitation of the highest kind. I put this out there for my fellow bloggers so that the word can spread. The crime is health care and in this case, the pharmaceutical branch. Here is the plot. They make it impossible for humans to get the medicine they manufacture to the point of desperation. That way the suffering idiots will pay anything for it.
I am on a specialty drug called Enbrel. Enbrel runs about $1760.00 a shot. It may be more now. I would do just about anything I could to get off this. My reasons have only been amplified after this week. Enbrel suppresses the over active immune system I have which causes the inflammation every time I move. It also slows down the production of extra cells that create the psoriasis on my skin and in my organs. I am lucky because it works. I was on originally taking it every week and I have reduced the dosage significantly. It also has some nasty side effects like making me incredibly susceptible to infections that could kill me because I would not be able to fight them off and can produce cancer cells. No problem.
I called in my prescription into Accredo last November when I had to switch insurances. It took two months to get the first order. I had to go through so many hoops but I did get it. Then for my next shipment, they decided not to send it because the weather was bad. Really? It is not like they hand carry it. Well, that was just the beginning of a long process of lies. Every time I called them, I had to start with a new person and they had to hear the story and then read the notes. The outcome in the last six calls was they had it figured out. Every time, it was something else wrong. But it was also an hour every night on the phone. The last time I called, the woman was so pleasant and assured me she had it figured out. This call was an hour and half. She wanted me to call the next day to her supervisor who she sat near and she would then get on the phone. She did not have a direct number. The next day I called at the specific time and the number went right to voice mail. I did it five times…which give me some satisfaction because she has five annoying voice mails that say nothing. Then I called the main number and supposedly got someone else who said it was her supervisor too and she was at her desk and that she would go get tell her to take this call. And the other lady who was supposed to be at her desk was at lunch. Who would imagine that? So I waited as she transferred me and she said she would stay on the line until the supervisor picked up. I was so excited….and then, click….. nothing.
That did it. I had our benefit person call the insurance company directly and they called through and supposedly they are getting it fixed. Then I called the rheumatology office and they are on it and supposedly it is being shipped out on Monday. We will see. I hope I get a ton of it as it lasts for two years. Do not use Accredo if you can or Express Scripts which is the same.
On top of this, I get a B12 shot monthly. I went to the doctor on Thursday to get it and they are out. They do not have any and they cannot get it. I was absolutely disgusted with all this. This is like being held hostage.
The good news is I did some research and found something better than the B12 shot which was not working. In four months of shots I only raised my level 87 points. I am not even close to the normal range. In my research, I also discovered that my ridiculously low B12 is also a contributing factor to the Psoriatic Arthritis and some of the other symptoms I have like poor metabolism. There is something interwoven in the inability for me to absorb B12 and what the impact the lack of this crucial vitamin causes in symptoms. I am now trying with the doctor’s suggestion sublingual methylcobalamin 5000 MCG and folate 800mcg. This is over the counter and not uncommon in better pharmacies. It seems like there are so many things that this simple remedy will cure…not mask but alleviate. I had to do the work and the research. It really makes me upset but this is truly the path western medicine is headed. And customer service is a dying skill.